The Canadian Neuromuscular Disease Registry (CNDR) has reached the milestone of 1000 patient enrollment! This is a significant achievement for the CNDR because as the number of patients in the registry increases, so does the registry’s ability to meet its goals of increasing understanding of neurological diseases and the burden they create; improving clinical care and disease management; and helping to facilitate research and clinical trials.
The CNDR is a Canada-wide registry of people diagnosed with a neuromuscular disease. It collects important medical information from patients across the country to improve the understanding of neuromuscular disease and accelerate the development of new therapies.
The term neuromuscular disease refers to over 40 different conditions that affect how muscles and nerves work. These diseases are both rare and complex, and affect many people of all ages around the world.
Finding treatments for these diseases has been challenging but recent medical and technological advances are changing that. New techniques and tools allow doctors and researchers to look at medical data from large groups of patients. This helps them find better ways to manage each disease and to develop new therapies.